Why am I doing this?

This blog is about Seth. It’s about his journey from birth to today and into the future. It’s about his illness (Sever Combined Immuno Deficiency) and the journey he is on battling this genetic illness. Seth is an amazingly positive boy, always smiling and takes everything in his stride as i hope you can see from the pictures and videos on this blog. I am his mother, and writing this for other families going through bone marrow transplant or who are dealing with a child with an immune deficiency. But the main reason I started this blog is because over the years more and more people have become interested in our son. There are questions that people have that they don’t want to ask for fear of offending or causing upset. This is my way of answering those questions without, hopefully, any awkwardness! This blog keeps everyone up to date with his progress. It helps people understand exactly whats going on, rather than me feeling like i have to dim down the reality. You can come her and read what you want, ignore what you think you don’t need to know. If you have a question – ask away. Really nothing bothers us. We are also using this blog to show Seth the huge support he has across the world and on 27th March 2015 are asking you all to post a pic of you wearing yellow to facebook, instagram or twitter with the #wearyellowforseth and #scid to spread awareness of this illness. We will be showing Seth the pictures, printing some off (especially the funniest or most inventive), and plotting the location of the pictures on his world map that we have in his hospital room.

People may think we’re a bit casual about this serious life threatening illness that our son has. We are most certainly not. But I’m someone who chooses my battles and puts my emotions and energy into things I can do. Like being there for him, raising him to be a good person as once he’s through all this he will become an adult and he will need to function in society, making choices based on facts and information instead of fear and emotion, and making his life an experience! We can’t do anything about our boy having this illness, but I can give him the best chance of beating it.

342 thoughts on “Why am I doing this?

  1. Dave86 says:

    Hey little Seth! I saw all your pictures off “the chive” and was moved so much by how positive your staying with that big smile on your face! Your an amazing young boy and will pull through all of this and have a wonderful life! We will be wearing yellow for you on a big cruise ship and hopefully in Sydney Harbour! I told my Dad about you and he read up on your story and told his employees to have a yellow friday. He has a healthcare business so all the nurses will be wearing yellow for you Seth! We all love you and your family very much! Thumbs up little guy ๐Ÿ˜ƒ๐Ÿ˜ƒ

    Dave. Australia

    Like

  2. Jacob Green says:

    in a world that is so full of pain a suffering it is good to see people willing to fight for love. You son has a beautiful heart and I will be sure me and my children wear yellow to support Seth. People forget the our own power to help and focus on them selfs. It’s important as a society that we stop and look around and help the ones that can’t help them selfs. The world can be a better place if we just let be one. #wearyellowforseth

    Like

  3. Domara08 says:

    Hey, this is a very touching story, I am on a fire department and told the other members about the story and we want to send Seth a picture and some of us would love to send him letters with encouragement on it, is there possibly a way we could get information on where to send these cards?

    Like

    • LJLane says:

      Hello. That is really lovely and Seth would love that. You can write to him at Seth Lane, Ward 3, Great North Children’s Hospital, Royal Victoria Infirmary, Newcastle Upon Tyne, England, NE1 4LP.

      Like

    • Bonnie J. Smith says:

      May I introduce myself, my name is Bonnie. I have been using a most remarkable product called Univera for a year and 6 months. This is not a gimmick, I just want to share what the Univera products have done for me and a very dear friend of mine. This spring I came down with a very bad cold. The worst I have ever seen. I was over my cold in two weeks, while others I talked to are still fighting it for over 5 weeks. My friend had been diagnose with a terrible illness and had to have treatments that killed his immune system and now after taking this product for 2 yrs his immune system is back up to where it should be. (This product is not intended to diagnose, treat, cure or prevent any disease.) For more information Please contact me in my email. I pray, I can help. To God be the Glory

      Like

      • LJLane says:

        Hi. Thank you. Unfortunately Seth does not have the ability to create an immune system. So this would not work for him. But thank you for thinking of him.

        Like

  4. Neil Swann says:

    All the best with future treatments little dude. For what it’s worth, there’s a 34 year old man and his two dogs that will all be wearing yellow in your honour.

    Thinking of you Seth,

    Neil and the spaniels (Bailey and Sullie)

    *Big hugs*

    Liked by 1 person

  5. Lucy Mac says:

    Hi there. I just want to say that this has been an incredibly inspiring and emotional story for my family and me to follow. We will all be ready and dressed up on Friday to ‘Wear Yellow For Seth’! Even my little Cockapoo puppy will get involved! So hopefully Seth will spot us on his wall ๐Ÿ™‚ please give him a thumbs up from us. His strength inspires us all to enjoy life to the max and love with all our heart. Wishing you guys all the luck in the world xxxxxx Lucy, Debbie, Steve, Freddie and Sybil (our puppy) xxxx

    Like

  6. Richard Clarke says:

    Having read this blog from top to bottom I was filling up with sadness but overwhelmed by what a brave little boy you have. He has been through so much and continuing to do so but he is marching on through and really putting all his energy into fighting this illness. He is enjoying his little life to the max and whilst its a terrible illness his smiles through this and his determination have moved me. This is because he has so much love from his parents and family and that must give him a lot of strength. You’ve both got a beautiful boy and with a personality to match. It made me laugh when I read how he has to have his toys 1 out at a time and how he tells his daddy off if he’s late with his injections – True fighting spirit.

    I’m lost for words to describe how I am feeling but just happy he is getting the treatment he needs. As you said we’re so fortunate in the UK that we have the NHS. I really wish Seth the best of luck with his treatment and I hope that normality returns for all of you sometime soon. I will be wearing yellow on the 27th March!

    What a son to be proud of!

    HIP HIP HOORAY HIP HIP HOORAY! Happy belated 5th birthday Seth ๐Ÿ™‚

    Lots of love from Richard (Leeds, UK)

    Like

  7. Mariah Blueher says:

    In the last week I have become absolutely obsessed with your son. I saw the video thread on Facebook after Cosmopolitan posted the article. I admire you, your family, and Seth for being so incredibly strong through this entire process. I cannot imagine what you are going through and I think you are all heroes for staying so strong and positive. I have sat at my computer and cried a few times with the love and compassion I feel towards him without even knowing him. I know that sounds weird, I just really have a strong emotional connection with children. I wish I lived closer so I could support you more. I am trying to think of ideas I can do here in Los Angeles to help support you in the best of ways. Do you guys have a Go Fund Me or website that is accepting donations to help take care of the medical bills at all? I would love to spread word about Seth in high hopes to get you the support you deserve and need. I saw the address above where we can send letters to Seth. Can we also send toys or games? What does he need/want? I am not sure about the sanitation rules etc so please let me know. You can comment back here or personally email me at mleighblue@gmail.com. I really cannot find the correct words to express what I am feeling towards Seth and for you and your family. I will be following him closely. Sending love, strength, and happiness.

    – Mariah Blueher from Los Angeles, California.

    Would he like anything from Hollywood? I can find some fun touristy trinkets if that is anything you think he would enjoy.

    Like

    • LJLane says:

      Thank you Mariah for your kind message. Seth’s can receive toys but they have to be able to be wiped clean and sterilised. Luckily he is in the UK so we don’t have any medical expenses as its all covered by the National Health Service.

      Like

    • LJLane says:

      Sorry I just saw the bit about Hollywood. I’m not sure he loves films but having never been to Hollywood I wouldn’t be able to guess at what trinkets there may Be!

      Like

  8. Jennifer says:

    He is such a cute little boy and a brave one i want to write him to prayers go out to you all i believe in the name of Jesus that he will be healed

    Like

  9. Jennifer says:

    I have 3 kids and i can’t imagine what you are going through me and my kids will be wearing yellow on that day happy birthday seth

    Like

  10. mary dindot says:

    my nephew’s son is the first baby in the world to survive this genetic disease. before he was born, his little sister died. she was 11 months old. andrew was born and treated at texas children’s hospital in houston texas. the bubble boy was at texas children also. when andrew was a couple of days old he received the trasplant from his mother. he was in isolation too but grew worse and the drs. gave him a new drug to be used on aids patients. andrew did a complete turn around in several days after being given this drug. he came home after 5 months. he is 25 yrs old now. hope the best for him. he is adoreable.

    Like

  11. Ganell Kelly says:

    This touches me to my soul. My son was born on March 26, 1966 at Sandia Base, Albuquerque, NM. He was diagnosed with Hypogammaglobulinemia in November, 1966. This is a “SKIDS” also. The military pediatrician had trained under the doctors that were founding St Jude Hospital. I believe that and the grace of God is why my son survived and will be 49 years old on Thursday, March 26. The first seven years were extremely tough with many, many illnesses and ICU stays. Again, we were blessed to be assigned to a base near the city that a civilian pediatrician practices. That doctor, who took my son as a patient at four, has been on the Board of St Jude’s for many years. My prayers and thoughts are with you and your precious son.

    Like

  12. Shannon says:

    Seth is such a brave and courageous young man! I’m truly touched by your story and will be wearing yellow sending support from Illinois! Is there a foundation for this condition? I own a small online jewelry shop on Etsy. My website is: http://www.sweettreazures.com. I would love to create a line of yellow jewelry in honor of Seth and donate all proceeds towards research, or to help families with treatment costs, lodging or any expences from those that need to travel away from home to hospitals or treatment centers etc… If this is something that you’d like to pursue and/or think could help please contact me at sweettreazures@gmail.com. My prayers are with all of you! Shannon

    Like

  13. Katelyn Fry says:

    Hello! I’m Katelyn. I’m located in the United States. I live in North Carolina close to the ocean. I have been following your son’s story. I want Seth to know I think he is the most handsome little boy I have ever seen. I admire your son. My whole family is thinking about him and praying for him. My whole family will be wearing yellow for your son. I want to send lots of pictures for him to look at and letters of encouragement. I saw you gave the address above and if that is okay with you I would like to send him letters and pictures as well. I hope for many blessings for your son and family.

    Like

  14. Kyle Loomis says:

    Seth, you will be healed tonight, I proclaim a healing in the great mighty name of Jesus Christ for you, through faith you WILL be healed. You will NOT need anymore surgeries. IN THE GREAT NAME OF JESUS YOU WILL BE FULLY HEALED AND ABLE TO GO HOME. your test will become a testimony! Through FAITH you will be healed. I believe that you will be healed tonight in the name of Jesus Christ. I KNOW THAT GOD WILL HEAL YOU! I AM PRAYING FOR YOU! and so are a number of prayer warriors.

    Like

  15. Domara08 says:

    We got the picture! We put together a little care package for him and its on his way! It would be great if you could send us a picture of him with his gifts so we know he received them! Also is it possible to email you the picture to make sure he sees it before Friday? My email is domara08@gmail.com

    Like

  16. Janet Mandour says:

    Seth sweetie, your young so your belief in God has not developed to the point it will, but I will tell you and your family that the lord will be with you every minute and the best part is he will never leave you. I will try to get all my friends to wear yellow on the 27 th and we will get pictures for you. โค๏ธ

    Like

  17. Ashley says:

    This is such a touching/heart breaking story. I can’t imagine the pain you have been going though. Seth is a doll! I will be praying he pulls through. He has already lived last when the docs said right?! I will be wearing yellow on the 27th, in honor of Seth. I am a new mom as of 3 weeks ago, I cannot imagine what you have been dealing with. I’m so sorry! No child deserves to go through hell just to survive. I would like to stay updated, is there a Facebook page or anything to keep up on updates about him? I pray for Seth and for his family. God Bless u all

    Like

    • LJLane says:

      Hello. Thanks for your message. Seth already had a bone marrow transplant when he was 8 months old. But this has failed. Without that first bone marrow transplant he would not have made his 1st birthday as he was too poorly.

      Like

  18. Amy and Aliyah says:

    Seth… HAPPY 5th BIRTHDAY !!!! โค๏ธโค๏ธโค๏ธโค๏ธ๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰๐ŸŒŸ๐ŸŒŸ๐ŸŒŸ๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰๐ŸŒŸ๐ŸŒŸโญ๏ธโญ๏ธโญ๏ธโญ๏ธ๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐ŸŽ‚๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘๐Ÿ‘โค๏ธโค๏ธโค๏ธโค๏ธโค๏ธโค๏ธโค๏ธ

    What a remarkable survivor you are!!!! My 11 year old daughter and I will be #wearingyellowforseth Friday for you!!!!! Your mom and dad really love you and we are new fans from Hartland, Wisconsin !!!!! Hang in there buddy… You have come this far!!! We are praying for you!!!!!

    Aliyah and Amy

    Like

  19. Tabitha says:

    I want to say that My birthday is the 28th and i have been more excited about friday so that i can join in and send a pic to support you both in this..He is adorable and so sweet still from all the stuff he has been through…He is just so precious and i want you to know that i will be praying for you and your sweet baby boy…We Love You Seth ๐Ÿ™‚ ๐Ÿ’–๐Ÿ’–๐Ÿ’–๐Ÿ’–๐Ÿ’–๐Ÿ’–

    Like

  20. Tanieka says:

    My kids and I will be wearing yellow for Seth on Friday. Such a courageous little boy. I can not even begin to fathom the struggle and heartache that all of you have had to endure. You are a very strong mother, I greatly admire your courage. You and Seth are truly an inspiration. Prayers are with you all every day especially on Friday! God is in control.

    Like

  21. Talitha Fick ( Principal) says:

    Hallo Seth and family. Growing Seedlings Learning Centre is a Kindergarten in Windhoek NAMIBIA. We were so touched by Seth’s courage and will power; what a brave little boy he is!!
    Since Seth loves Fireman Sam and Paw patrol so much we decided to visit our local Fire Station on Friday 27 March 2015 in support of Seth’s cause. Our preschoolers all wore yellow shirts on this very special day. We would love to upload a photo to Seth’s facebook and blog, I’m just not sure how to do this. Please be so kind and assist us with the process.
    Seth today on the 27th of March 2015 you were on our minds, in our hearts and prayers the whole day……all the best with your recovery.

    Like

  22. Dan M says:

    Dear LJLANE,

    What an incredible, young man. My colleagues and I were blown away by his courage and determination. We had an idea for a gift for Seth, with your permission of course.

    Please feel free to contact me on millendauthor@gmail.com so we can discuss!

    With best wishes, to your family and Seth!

    Dan
    x

    Like

  23. Pam Winters says:

    Dear Seth, you are such a little trooper and a hero. With what you have gone through and yet sit there with the most adorable smile. I will wear yellow in your honour. Prayers snd hugs little guy! Good luck with your surgery.

    Like

  24. Prasanna Kumar Yenda says:

    Hi,

    I’ve been following your son and family’s story. I’m from India.
    What a great lad he is and toughest. I would really like to write to him.

    Can you give me an address to send the Letter from India?

    May god bless your son and your family. I really wish that he will recover soon.
    I’m an atheist and I stopped going to pilgrimages and temples long ago. But I did it again to pray for Seth. You and your husband are really great people. May your family be in happiness forever in future.

    #Seth #good_luck.

    Like

    • LJLane says:

      Hi. Thanks for your message. You can write to him at: Seth Lane, Ward 3, Great North Children’s Hospital, Newcastle Upon Tyne, England, NE1 4LP. Thank you.

      Like

  25. Tesha says:

    You really make it appear really easy together with your
    presentation but I in finding this matter to be really
    one thing that I feel I’d never understand. It kind of
    feels too complex and very huge for me. I’m having a
    look forward for your subsequent publish, I will attempt to get the hold of it!

    Like

  26. Valerie Payne says:

    My family was so proud to wear yellow for seth !!! He seems like such a sweet little boy with such an incredible personality and wonderful family and now a huge group of friends who are thinking about him and wishing him well ….we have not heard how Seth is doing and would love to know how we can find out !!!!! God Bless Seth and his family !!!! Waiting to hear good news thank you !!!!

    Like

  27. Gabrielle Almeida says:

    Hi, Seth!
    You have a friend from Brazil, his name is Theo, it’s a three year old beautiful boy, just like you. I told him about how strong you are. You have so brighten eyes and when I see you, I remember Theo. He’s waiting for good news! Who knows one day, both of you playing at a park? Amazing!

    Kisses and love from Brazil!

    P.S. Sorry my english!

    Gabrielle and Theo

    Like

  28. Filipe Sanches says:

    Hi. I’ve been following the page since last week and got really touched by Seth’s story. I would like to mail him a present. I’m gonna buy him a yellow shirt from the Brazilian football team with his name on it, do you think he would like it? So he can wear it when he gets better ๐Ÿ™‚

    Oh, I need to know what’s his shirt size and the address.

    The dedication that you and your family have is amazing, the world is with you.

    Best wishes from Brazil.

    Filipe

    Like

    • LJLane says:

      Thank you Filipe. Set would love that. The address you can send it to is Seth Lane, Ward 3, Great North Children’s Hospital, Newcastle Upon Tyne, England NE1 4LP. Shirt size would be 3 years.

      Like

  29. Brett says:

    Seth is the most adorable cutest lad I have ever seen. With two of my own under 3 I could imagine how stressful and painful this could be. I love seeing him smile and doing well. I’m always hoping and praying that he pulls through it entirely! Is there any way to possibly donate? The bills must be hefty and a little charity never hurt!

    Again, all the best for Seth, my little man love fire trucks too.

    Best Wishes from Canada North

    William

    Like

  30. Naran says:

    Really a brave lad Seth!!
    May god give him strengths to fight SCID’s butt!!
    My 4 yrs old son is also fighting Leukemia (AML) currently and recently had a Haplo BMT from myself. We know how difficult the journey is and its inspiring to see how strong you all have been.

    Regards,
    Naran

    Like

  31. Tommy says:

    Hello my name is Tommy and I live in Fort Lauderdale FL USA.. I happened across this site a few months ago and have been watching and keeping up with Seth’s Journey. I just wanted to offer you encouragement, you are very strong. A family we know went through something very similar and that little girl is a beautiful teenager now and doing well. Stay Strong and please let Seth Know he is a Courageous and Strong young man and I think of him often and know that he is going to do well now and in the future. Will you give him my best and I will be sending a card for him to read.

    Like

  32. Miguel Angel says:

    Aloha,

    Thank you for being such an amazing mom to your little hero, your blog post show the strength of a warrior mom. I recently registered to become a bone marrow donor in hopes to be able to help someone and today randomly came across Seth video on Facebook. From Honolulu, HI I wish Seth all the best for being such a strong cool 5 year old.

    Miguel

    Like

  33. Justin says:

    Hey there, I would like to say thank you for sharing seth’s story. This is why I have be came a nurse. I love to help those in need and seeing this blog reminds me why I became a nurse. And also to say that it is good to see he is doing better each day.

    Like

  34. Victoria Lopez says:

    I love Seth. He’s so cute and the little videos you post make my day. I’ve told so many people about him. It’s actually so uncanny how much he looks like my nephew Lachlan who also absolutely loves Paw Patrol!
    Seth is such a beautiful little boy and the video where you told him he was going home tomorrow made my heart so happy. I look forward to seeing more updates on your precious little boy!
    Send him my love from all the way over here in Australia.

    Like

  35. Ciaran hartin says:

    Can someone please let me know how I can help/donate to this family. Just watched a show and seth was on it. Broke me heart but it didn’t seem to fase him. He looks so happy๐Ÿ˜Š looking forward to the post where he gets a clean bill of health!

    Like

  36. Tayla says:

    Hi seths mummy!
    I am writing here today as its the second month of finding out my son also has scid, how is little Seth doing? I’ve just read somewhere I don’t know how recent it is but Seth will be needing a second transplant? Our little boy is in the process of transfusions and tests running up to his and our daughter is his doner. I was wondering if there’s anyway we can talk if your willing please at this early stage were still very confused as you must have been too I was just hoping maybe you can answer a few questions from experience which consultants aren’t really answering us!

    Like

  37. Katelyn says:

    Hello! Greetings from Michigan!

    I seen that a year ago today I posted the video of Seth asking us to wear yellow!
    I hope he is doing better and that you are all doing well!

    I will again be wearing yellow this March 27th!
    God Bless!

    Like

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