Being born and living with a life limiting illness (that leads your mum to write about it on the Internet) means that loads of people know your face, your diagnosis and other bits, but don’t really know you… So I though it would be nice for you readers to get to know our lad, who is more than a bubble boy. Actually I’m pretty sure Seth doesn’t consider himself to be ill. He just thinks we’re all a bit mental!
He may be stuck in a room with no where to go….but this boy still has things to do!
Seth has always been a stickler for the rules..(those of you who know me will realise how proud that makes me!!). Seth believes everything has its place and his playroom at home is managed through “one toy in…one toy out”. He often shakes his head with a tut and a sigh when other children have been in and (naturally) trashed the place.
This acceptance of rules is the bane of his fathers life at times as he is often told “not like that daddy” and daddy is often on the receiving end of a disapproving grunt and stare if something hasn’t been done as it should. Even his daily injection (which he hates) if it isn’t done on time daddy gets a good telling off!!
The bane of our lives…….firman sam – or anything fireman related….
He’s genuinely a very affectionate boy:
and a bit of a plonker…..
and he will give anything a go…
even a bit of posing…
were just proud that he makes the most of his life.