Why am I doing this?

This blog is about Seth. It’s about his journey from birth to today and into the future. It’s about his illness (Sever Combined Immuno Deficiency) and the journey he is on battling this genetic illness. Seth is an amazingly positive boy, always smiling and takes everything in his stride as i hope you can see from the pictures and videos on this blog. I am his mother, and writing this for other families going through bone marrow transplant or who are dealing with a child with an immune deficiency. But the main reason I started this blog is because over the years more and more people have become interested in our son. There are questions that people have that they don’t want to ask for fear of offending or causing upset. This is my way of answering those questions without, hopefully, any awkwardness! This blog keeps everyone up to date with his progress. It helps people understand exactly whats going on, rather than me feeling like i have to dim down the reality. You can come her and read what you want, ignore what you think you don’t need to know. If you have a question – ask away. Really nothing bothers us. We are also using this blog to show Seth the huge support he has across the world and on 27th March 2015 are asking you all to post a pic of you wearing yellow to facebook, instagram or twitter with the #wearyellowforseth and #scid to spread awareness of this illness. We will be showing Seth the pictures, printing some off (especially the funniest or most inventive), and plotting the location of the pictures on his world map that we have in his hospital room.

People may think we’re a bit casual about this serious life threatening illness that our son has. We are most certainly not. But I’m someone who chooses my battles and puts my emotions and energy into things I can do. Like being there for him, raising him to be a good person as once he’s through all this he will become an adult and he will need to function in society, making choices based on facts and information instead of fear and emotion, and making his life an experience! We can’t do anything about our boy having this illness, but I can give him the best chance of beating it.

342 thoughts on “Why am I doing this?

  1. Kat.Tastic says:

    Finally! This little guy gets my first hash tag ever on the 27th… I’m also excited to purchse a yellow sweat suit, it is a wonderful color! All the love and hope for Seth and his family….

    Like

  2. Miranda says:

    Hi,
    I just watched Seth’s video and read your entire blog so far. I commend you, your husband, and your family for being strong for Seth and being there for as much as you can. In his honor I will definitely be wearing yellow! I was wondering if it’s at all possible to send things to Seth. Like cards or little gifts to help brighten his day. Let me know I will definitely get something out in the mail for the little guy. God bless him and your whole family.
    With love,
    -Miranda

    Liked by 1 person

    • LJLane says:

      Hi Miranda. Thank you very much for your message. It’s very kind. We’ve been totally inundated with requests and messages. We were totally unprepared for all this as it’s just been my husband and I. If you like to send Seth a card or something you can to: Seth Lane, Ward 3, Great North Children’s Hospital, Royal Victoria Infirmary, Newcastle Upon Tyne, England, NE1 4LP. THANK YOU

      Like

    • Cat says:

      Hi, I’m 11 and my 12th birthday is on March 27th 2015. I will be notifying my friends who are coming to wear yellow if they can. We will post it on instagram(most likely) and put next to it ‘love for Seth’ so you know it is us 🙂 I hope Seth ipbecomes a very happy boy and lives a great life. Much love xoxo Cat

      Like

    • Sarah says:

      Seth is one of the many reasons I joined “be the match” bone marrow registry I pray for Seth and hope he has a quick recovery

      Like

    • Roger says:

      I caught your video today and I shared it all over the place! I will definitely wear yellow for your little guy! I hope things go well with his bone marrow transplant. Give him a big hug from me and my employees here in Boise, Idaho!

      Like

    • Steve Montelongo says:

      Hello, I just watched the video with Seth holding up the yellow signs asking people to wear yellow on March 27. I’ll be wearing yellow that day. God bless Seth and his family. I said a prayer for him and I will think good thoughts also.
      He looks like a happy kid, always smiling and laughing in his photos. 🙂

      Sincerely, Steve from San Diego, Ca.

      Like

  3. Anthony Baker says:

    In a world that so often treats those with disabilities like second-class citizens, if they give them the dignity to live in the first place, your son shames them all. And, as news about mothers harming their children is becoming more and more common, YOU are the kind of hero God made mothers to be. Thank you.

    Liked by 2 people

  4. Tamara says:

    Hi I watched your video last night. As I work in childcare I am doing up posters. we will all be wearing yellow for Seth. 🙂 I was wondering if you could email me so this way we can have a chat about making a Donation 🙂

    Like

    • LJLane says:

      Hi tamara you are very kind. As his mother I just wanted to say we’re not pursuing donations. Seth’s treatment is covered completely by the National Health Service here in England. Thank you very much for wearing yellow though these pictures will help cheer Seth when he is struggling.

      Like

  5. Tarin McLaughlin says:

    I saw this in your earlier comment, Seth Lane, Ward 3, Great North Children’s Hospital, Royal Victoria Infirmary, Newcastle Upon Tyne, England, NE1 4LP, is it still the place to send something if we wanted? A card or toy or something?

    Like

  6. Amanda Skerman says:

    Your little man is so beautiful and you are a fantastic mum! When is Seth getting his second BM transplant? Sending love and thoughts from Australia xx

    Like

  7. Oni Marichalar says:

    You and your husband are awesome , your sons are beautiful and I have nothing but respect for you. I understand doing what you need to , to give your child a fighting chance. I have not 1 but 2 daughters ages 4 and 3 who have T1 Diabetes , it is a constant struggle and a life full of worry 24/7 365 and hospital visits at the first sign of sickness, finger sticks and injections 4/5 times a day , I also have a 5mth old to add some fun to the mix 😛 … The girls saw his video and want to make a card so be expecting one from Delilah & Desirae 😀

    Like

  8. alex bradbury says:

    i’ve read the blog and i commend how strong and positive seth is, he is such a blessing from god and he can use this illness to touch so many lives and can be a light shining in the dark. my 5 year niece charlee use to watch peppa pig and fireman sam all the time. my name is alex by the way and i’ve living with md for 26 years,witch is a neoromuscaler disease that deterates your muscles , so i can sympthize whith seth and your family. just always put your faith in god and he’ll never let go! i’ll definetly be showing my support on the 27th, love u guys and u rock seth:)

    Like

  9. Zura Zul says:

    Just want to let you know that you and your husband is incredibly strong to be so optimistic in this situation. Seth is lucky to have the two of you in his life. i pray that Seth will get well and grow up to be a strong person like his parents. Your son just made my day with his video. Shoutout from Singapore. Your story has made it here and im sure lots will be wearing yellow on the 27th

    Like

  10. Ganeza says:

    Your little hero is the cutest boy ever! I just want to stick him in my pocket and take him every where I go! 😀 I do not have money to donate, but I will take a picture with yellow to show my support, it’s one of my favorite colors too! Great choice brave one! I will light a candle for you and send you positive energy. Stay strong, this will get better, you’ll see 🙂 We live in a world full of miracles, and you are one of them Seth. Peace and love to all. Namaste 🌹✌💛

    Like

  11. Brianna says:

    First off I wanna say im not sure how your family is on religion but I will keep you and your family in my prayers. I am very touched by seth’s story. It breaks my heart to see such innocence struggle with hardships of life such as this. I am a soldier of the US military and I would very much like to contribute to the well being of seth. If you would be so kind to email me I would love to talk more about that matter. God bless you all and give seth a big high five for me for being so strong!
    Email:bridawn33@gmail.com

    Like

    • LJLane says:

      Hi Brianna. Thank you for your message. Seth’s medical care is paid for by the national health. So we as his family do not need to pay for any of it. We’re very lucky. Thank you.

      Like

  12. Talya smith says:

    Hi . Seth is adorable and for him to have parents like you guys is amazing . I just wanted to say I will be wearing yellow to show my support for this cute amazing boy . I also wanted to ask you how do I get information on a bone marrow transplant? I want to help you guys as much as I can . This story has really touched my heart

    Like

  13. Kamran Khan says:

    Just read all this blog, what a brave little fighter. I pray that his second stem cell transplant goes successfully and his home soon. He is blessed to have parents like yourselfs, stay strong. Just a quick question can we send gifts as in toys etc to the address above?

    Like

  14. Goa says:

    Can you post up the results of his Autologous Hematopoietic match criteria? I’ve been on the registered bone marrow donor list for years. I feel if people could directly say, this is what I need…. and if individuals knew they are a match… well, if it were me, i’d already be on the plane to you, reading about donor pre-transplant prep protocol.

    Like

  15. Joyce Ann A. Juanillo says:

    Hello. Me and my boyfriend just watched Seth’s video last night and it brought us to tears. He is so cuteeeeee. We pray that he will have a successful operation. Send our warm hug and kisses to baby seth.

    we will definitely wear yellow on March 27, and we will send you the photos, hope you can print ours so he will be able to see it. Gob bless you baby seth and your family. Aja! Fighting!

    Jae and Joyce (Philippines)

    Like

  16. jenny says:

    Seth you are my little Hero!! Stay strong Baby! xox I will be wearing YELLOW LOUDLY!! I have hypogammglobuliemia and was told for many years it was all in my head. These genetic immune diseases are not well known about and stigmatised with the “Boy in the Bubble”.

    We need to get this out to the world – so people understand, donate blood for IVG and Bone Marrow donations!!

    You are in my prayers everyday and what a brave little angle soul!

    xoxox

    Like

  17. Audra Zinom says:

    I have a picture I drew that I would love to ship to your son. If you want to see it please email me 🙂 My email is Audra.Zinom00@gmail.com. I am sure he would love it and For Sure I will take a pic with it before sending it to #wearyellowforseth. He is amazing and inspiring and will keep me moving stay strong buddy

    Like

  18. Natalie says:

    He is seriously the most adorable little boy ever! From what I have read not only is this little boy very strong but so are the people who raised him. You did a very good job! Keep up the good work and I will pray for him!

    Like

  19. John Lukac says:

    Hello,
    I saw Seth’s video today and it really moved me. I already took a picture in one of two yellow shirts i own just for the head start. He is adorable and I truly hope he gets better. I will pray for him and will for 100% wear yellow on the 27th and would wear it all the time if it would help. I admire you guys and wish you all the strength and courage in the upcoming days. God bless Seth and his family!

    Like

  20. Dylan says:

    This just breaks my heart…. I can’t stand seeing stuff like this that is just so common in our world. How do you guys manage this all? You guys are very strong to be able to work through this. I would have had a melt down and just burst into tears. God has defiantly blessed you with the strength! I will wear yellow for Seth and I will pray for this little guy everyday! I just can’t help from tearing up! We all love you Seth! #WearYellowForSeth! P.S . Wouldn’t it be just awesome if Paw Patrol made an episode Just for Seth? Just thinking! May God keep you guys strong through it all! Remember! I can do all things through Christ who strengthens me! So get better Seth!

    Like

  21. César says:

    Hello,
    I’m from México and I watched Seth’s video yesterday. I’m trying to get my entire school generation to use a yellow shirt next Friday to take a photo and upload it so Seth can see how big and important he is for all of us.
    We’ll have Seth and your whole family in our prayers.
    Say hi to Seth for me!:D

    Like

  22. César says:

    Hello,
    I’m from México and I watched Seth’s video yesterday. I’m trying to get my entire school generation to use a yellow shirt next Friday to take a photo and upload it so Seth can see how big and important he is for all of us.
    We’ll have Seth and your whole family in our prayers.
    Say hi to Seth for me!:D

    Like

  23. Taylor Hannah says:

    does he have a favorite song? I would like to put something together for your super hero! God bless you and your family and you will be in my prayers.

    Taylor

    Like

  24. Jocelyn Barnhart says:

    I too have been plagued with occasional outbreaks of cold sores. However, my doctor has given me a way to successfully PREVENT the outbreaks by prescribing me a medication called Acyclovir. I’ve been cold sore free since I began taking it 6 years ago! Just thought it might help you to always be there for Seth.

    Like

  25. Crystal Biddle says:

    you are doing a fine job with that little man!! he is so adorable!! Seths story is heartbreaking, makes me want to cry.. i dont know if i could be as strong as you if that ever happened to my little guy. I will definatly be wearing Yellow for him!! would also love to come and visit and play with the little guy. Please keep everyone updated on how he is doing!

    Like

  26. Magdalena Ilieva-Dimitrova says:

    Hi,
    My name is Magdalena from Bulgaria.
    I just watched Seth’s video.I commend your family for being strong for Seth. In his honor my son and I will definitely be wearing yellow.
    Greetings to Seth.

    Like

  27. Anne smith says:

    Hi,
    My name is Anne and I live in Sydney, Australia. I have seen seths video and I want to do anything to help so I have organised the childcare centres of the company I work for to all wear yellow for Seth and we wish him all the best xx

    Like

  28. Courtney says:

    Hello! I love this idea to not only support Seth, but to raise awareness! I am doing a school wide campaign(I am a teacher in Illinois, USA) and awareness for Seth and scid. Is there a way you could give me an email address I can reach you at and I can talk with you and message you more and how I can send you something? My email is cjgrand@siu.edu

    I’m looking forward to hearing from you!

    Like

  29. Joaquin says:

    I think we can all learn a lot from your little angel seth. Having such a positive attitude even though life has not been so kind to him talks a lot about not just seth but his parents attitude towards life. I will for sure support seth and wear yellow for this little guy. Please tell seth that he is an inspiration. Dont give up buddy!! Greetings from Texas!!

    Like

  30. Timea Ungvari says:

    Dear Family and Seth,

    I am from Hungary and I just strated to cry in my office while reading the blog. Its just great, lovely, respectful, amazing, and I dont know how to express the feeling while whaching the video of Seth. I just fell in love with him. I am sending all the best wishes, power and love for you, family and especially for Seth!!!!!! ❤ Will wear yellow on the 27th and encourage friends to do the same!!!

    Like

  31. Sally Ann says:

    Hello, I am at university and watching the video of Seth really touched me so I would love to do a bake sale or something and get my university group to wear yellow for him and possibly make a video to show our support to him. I was just wondering of course, if you would allow this and where we could donate to? Thankyou.

    Like

  32. Nikki says:

    Hi Seth! I don’t have many words to express how amazing you are. I will always keep you in my prayers. Stay strong, little man. God smiles upon you. I will wear yellow just for YOU. 🙂

    To Seth’s parents – is there any way I can mail him a card to the hospital he’s staying in? Thank you for telling us all about your journey with Seth. I will keep your family in prayer.

    Like

  33. David Toledano says:

    Hi Im from toronto and was in school and when I watched the video I was really emotionally moved by Seth’s courage and smile and this whole initiative for Seth. I think he is the most adorable boy and I’m going to spead the word about this to everyone I know. He deserves only the best, from what I’m reading and seeing he is so strong tell him to stay strong. I am running a half marathon soon and I’m running it for Seth. I’ll be wearin yellow that day. To your whole family and Seth of course keep on being strong and keep on fighting, you guys are so inspiring
    David Toledano

    Like

  34. Glory Banton says:

    So precious!! He reminds me of my little brother Dylan. My fiance and i will definitely be participating in #wearyellowforseth! I’m an artist and i would like to draw him a picture, would that be ok? if so, what address should i send it to?

    Like

    • LJLane says:

      Thank you. That’s very kind. You can send a picture to: Seth Lane, Great North Children’s hospital, Royal Victoria Infirmary, Newcastle upon Tyne, NE1 4LP

      Like

  35. Courtney says:

    I’m in Illinois and I teach at a middle school and we will all be wearing red and rooting for Seth and your family! (I also posted above, but not sure if you saw it.) 🙂

    Like

  36. Briana says:

    I believe the awareness you are raising for Seth and other children with the illness is extraordinary. My nephew has been suffering with various health problems since his birth and stories like Seth’s give us strength and hope through every surgery he goes through. Family, friends and myself will be participating in #WearYellowForSeth on March 27th and will be following his journey and his steps through his battle. 💛

    Like

  37. andy P says:

    Hey seth! My wife and I will be wearing yellow that day and we wish you the best of luck! we are so impressed at how much of a true gentleman you are ! ..wwe just want you to know that you are an inspiration to us one question for mom amd dad…how would one go about aeeing of thwu are a match for bone marrow? Because if I could I would donate as much as would be needed? stay strong kiddo!

    Like

  38. Joyce Ann A. Juanillo says:

    Hello. Me and my boyfriend just watched Seth’s video last night and it brought us to tears. He is so cuteeeeee. We pray that he will have a successful operation. Send our warm hug and kisses to baby seth.

    we will definitely wear yellow on March 27, and we will send you the photos, hope you can print ours so he will be able to see it. Gob bless you baby seth and your family. Aja! Fighting!

    Jae and Joyce (Philippines)

    Like

  39. Paula Cunha Cardozo says:

    Hi, everybody! Hi, Seth! I’m from Brazil and found out about you and your beautiful family! I’m praying for you and I’ll definitely wear yellow on 27th March! I would like to know if Seth will see my picture! God Blees you all! I love this because is for a good cause! Please, show him the pic, I think I’ll take one with my dog too! My name is @paulacunhacardozo on Instagram. Hoping you’ll like the pic I will sent in his behaf. He is super cute! Here in Brazil we say that cute is “fofinho”! Xxx And get better soon, little angel!

    Like

  40. Stephanie says:

    I have been following Seth’s story since the day I saw the video of him on Facebook. He has honestly stolen my heart. I saw this commercial yesterday on TV and thought it would be perfect for Seth… Its a page where you create a shirt, people from all over the world can buy it! Its also free! The funds from the shirt will be sent to you for gas expenses or so you can take a small family trip if possible. I noticed a lot of people said they don’t have a yellow shirt and this way you can make one with #wearyellowforseth on it.. just a thought I guess… maybe it would be something to look into..

    https://www.booster.com/how-it-works

    Like

  41. Alex says:

    I shall most definitely be wearing Yellow on the 27th March and shall be urging my work colleagues to do the same! Seth, words don’t describe how much of an inspiration you are!

    I was so touched by the video I came across on Facebook. There’s no doubt this little boy has a bright future ahead of him. I look forward to the day he finally beats his illness and pray it comes soon!

    Liked and shared obviously!

    God bless you all

    Like

  42. jenny says:

    I have made a little card for Seth but can’t attach it for him on this blog? Is there some way of sending a PDF?

    Jenny McL
    xo

    Like

    • LJLane says:

      Hi Jenny. If you have access to facebook you can send it on a message. If you search for the page Wearyellowforseth it is managed by me and some of Seth’s family.

      Like

  43. Malene says:

    Hi beautiful Seth! Big high five from Norway! You are my hero! your story made me cry my biggest tears. Not only because i feel sorry for your health but because you inspire me and made me put things in perspective. Seeing your smiles makes me so happy and youre the cutest most beautiful little boy. Me and my boyfriend through 6 years have no kids of our own yet but when we do, we hope he will be as awesome and amazing as you are! On march 27th we will be wearing yellow, off course!
    Vi heier på deg, Seth (we are chearing for you, Seth)
    love from your biggest fans from Norway,
    Malene and Øyvind, Kristian and Iren

    Like

  44. Camie E. says:

    Hi, my name is Camie and I live in upstate NY. I noticed Seth’s video by chance on my moms Facebook since I don’t have one and am so happy I did! I just wanted to say to Seth that, he is a Brave Little Toaster including my little hero as well! I would like to send all of my love to you guys, what you are doing is amazing. You have a beautiful family and I wish you all the health and happiness in the world. I was wondering what Seth’s favorite animal is so I can send him a cuddly friend? 🙂

    Xoxo<3

    Like

  45. Caelin says:

    Hey there!

    I am in love with everything that you are doing. That smile seth has has warmed m heart so much!! I work with kids of varying illness/disabilities and I adore my job. It is kids like seth that make the world a better place! I am so inspired by your story. He is a true gift ❤

    Sending much love and support from Nova Scotia Canada!!

    Like

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