Why am I doing this?

This blog is about Seth. It’s about his journey from birth to today and into the future. It’s about his illness (Sever Combined Immuno Deficiency) and the journey he is on battling this genetic illness. Seth is an amazingly positive boy, always smiling and takes everything in his stride as i hope you can see from the pictures and videos on this blog. I am his mother, and writing this for other families going through bone marrow transplant or who are dealing with a child with an immune deficiency. But the main reason I started this blog is because over the years more and more people have become interested in our son. There are questions that people have that they don’t want to ask for fear of offending or causing upset. This is my way of answering those questions without, hopefully, any awkwardness! This blog keeps everyone up to date with his progress. It helps people understand exactly whats going on, rather than me feeling like i have to dim down the reality. You can come her and read what you want, ignore what you think you don’t need to know. If you have a question – ask away. Really nothing bothers us. We are also using this blog to show Seth the huge support he has across the world and on 27th March 2015 are asking you all to post a pic of you wearing yellow to facebook, instagram or twitter with the #wearyellowforseth and #scid to spread awareness of this illness. We will be showing Seth the pictures, printing some off (especially the funniest or most inventive), and plotting the location of the pictures on his world map that we have in his hospital room.

People may think we’re a bit casual about this serious life threatening illness that our son has. We are most certainly not. But I’m someone who chooses my battles and puts my emotions and energy into things I can do. Like being there for him, raising him to be a good person as once he’s through all this he will become an adult and he will need to function in society, making choices based on facts and information instead of fear and emotion, and making his life an experience! We can’t do anything about our boy having this illness, but I can give him the best chance of beating it.