So, it’s been 230 days since Seth was admitted to hospital this time. So much has happened in those 7 and a half months. I think we have a different child! A child that is happier, more content, taller, healthier and who feels like everyday is less of a battle.
We still have a journey ahead of us and no one knows yet what challenges we will face. We still do not know if Seth’s body is able to educate the new cells, we still do not know what the GVHD in his skin is going to do or if it will respond to treatment. But we have come so far.
Seth’s consultant gave a good analogy- “you can put the champagne in the fridge, but don’t drink it”. We’re not at the ‘job done’ stage yet.
However, there has been one development this week……
http://youtu.be/_T1sCqGAkus
Yep, we have been so lucky as to be able to bring Seth home!!! We said our goodbyes to Newcastle
Our connection with Newcastle is far from over. We have to go back to Newcastle weekly to start with because he needs that monitoring. The doctors are still not 100% happy. But they are happy enough that he can finally come and live in his home with the rest of us!
Some of our friends decorated the house for Seth’s welcome home!
So what is the first thing you do after 7 and a half months away from home?
Play your drums and….
Sir I your fire engine with a gold fireman’s helmet on of course!!!
Although he is home he still remains in isolation. He is not allowed any contact with children, and only contact with well adults. He’s allowed to go out but not to busy or enclosed spaces, and he is not yet back to school. In England yesterday was the start of the school year for most people. But there was no obligatory photo of Seth in his school uniform. Hopefully we will be posting that in the new year if all goes well!
Seth is so excited to be home. He discovered toys in the play room that he hasn’t seen in a long time, got to see our family dog, play with his brother, and simply sit on our sofa eating popcorn watching his favourite TV programmes!
And then of course SLEEP IN HIS OWN BED!!!
Whilst daddy, who has also not been home in 230 days, got to put some storage together for the toys so the playroom could be safe and ready for the boys in the morning!!
We know our journey is far from over. It is not the first time we have come home hoping for a bright and easy future for our boy. But today is good, we will deal with tomorrow when it arrives!
Thank you to all the staff at the Great North Children’s Hospital in Newcastle Upon Tyne and the Bubble Foundation – you guys got us this far and kept us together as a family. Thank you.
Such an incredible difference between the “then” and “now” photos! Seth has really taken on his superhero persona!
Welcome home, Dear Seth! I am so glad you get to see your dog and be with your mummy and daddy in your own home and get to sleep in your own bed. Thank you for taking the whole world along with you on your journey! It makes me so happy to see your happy, sunshiny face! Be well, dear one, and keep us posted on how you are doing! Hopefully soon you will be back in school with friends! I am so, so happy for you!
Love from Kari and Kimo the dog in Minnesota! 💛💛💛
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What an incredible little fellow! I am so unbelievably happy about these latest updates! Yay Seth!!!!!! 💛
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So pleased for all of you! Go Seth ! 🎉🎈😄
Love from
Mairi’s mum
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So happy he is home and having fun. Always on our minds and in our hearts. Love u seth and family 💛💪💛
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Well done Seth, you are my hero !! You have been very brave and are lucky to have such a loving family. I know you will continue to get bigger and stronger. Lots of strength and love to you Seth and your family. X
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Welcome home seth!!!
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Welcome home Seth! You’re doing so well, you and your wonderful family are stars! Thank you for giving me my biggest smile of the week (and a few happy tears too!). Lots of love from Glasgow xxx
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Great news – Seth looks so happy to be back home!
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Thank you so much for sharing his incredible journey with us…he is an inspiration…I felt so badly reading your updates, especially when you posted the pics of his lil hands…very happy to see how far he’s come and how much healthier he looks….
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Absolutely great news! Nothing better than getting to be home playing with your family. Soon you will be going to school!! Dear child enjoy every minute! =]
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Oh, what joy! 🙂 I’m so thankful and so very happy for you all! I’m praising God and continuing to pray for you. 🙂
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And such a blessing for us to see the videos and hear his excitement, and yours! Thank you. 🙂
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What fantastic news, I’m so happy you are home with your family.. I hope you keep on doing well Seth…😘
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So happy you got to go home, this made my whole day!!
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The videos warmed my heart. Just what the world needs to see in troublesome times.
Continuing with the prayers, God bless 🙂
Nay
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All I can say is my heart is full of love and happiness for your family. So thrilled for you. Enjoy it all!
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Fantastic news that you are all home together, you must be thrilled! Hopefully things will keep improving and Super Seth will get stronger every day!!
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Seth….. YAY!!!!! You finally got the chance to go home. All of your friends have been reading what you write all been praying for you. This is probably the best news we have heard in a long time. Very glad that you are feeling better and stay one step at a time and God is going to get you well!!!!!
Love Amy & Aliyah….. From HARTLAND, WISCONSIN
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Daddy and Mami did a great job. My tears are falling down. Love u Seth!
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Amazing! Thank you so much for sharing this wonderful moment with all of us! Your Seth and entire family have taken the world on this journey … So grateful to know he is is a good place and praying his climb is steady and upwards! Home sweet home! Hugs and support from Memphis, Tennessee. 👍
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Wonderful news God bless you all made my day to read this
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What a way to wake up at 5:55 a.m. this morning.The very first thing I see is this post to make my holiday weekend(Labor Day) amazing! The little boy that has brightened my days every day for the last 200+ days has finally gotten to his home!!! Again, I can’t tell you how much joy your family has brought to out lives. It is been filled with sad tears, scared tears, and more than anything happy tears and love. Thank you again Leanne and Nik for sharing your “Little Hero” with us. God Bless all of the wonderful Doctors, Nurses and everyone who has had anything to do with the special little boys recovery. Every prayer, every posting, every piece of yellow clothing, obviously made a difference for Seth. Truly, the world needs more acts of love and support like were shown to your family. I am just so glad that I had the opportunity to be a part of it. Enjoy everyday with your family Leanne!! You are truly an Angel. Love you my little Seth!!! Hugs and much Love from South Dakota, USA!!!!!!
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Been following your story iv also had a stemcell transplant and have gvhd but settled and under control… 10 years post transplant for me now, so happy to hear that Seth is home and wish him all the best xx
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Thank you Danielle. It is really nice to hear a successful experience with GVHD thanks for sharing.
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Excellent news… yet another victory. Cheers!!! 😃
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God bless Seth and the whole family! You continue to be in our daily prayers, and God knows how many people around the world are praying for such a BRAVE and wonderful little boy who is moving slowly towards the goal of being just an adorable little boy! I just pray for the day that we receive an update telling us he is just a happy and healthy boy who went through a tremendous experience when he was a very young lad. God Bless, a faithful prayer warrior in the U.S.A.
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This youngster’s story has been such an inspiration in my life. Please keep on sharing. I’m sure there are plenty others out there who feel the same.
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My name is Julie Eddlemon and I live in California, USA. I’ve been following all of your posts since the first message I saw posted on Facebook “Wear Yellow for Seth”. I posted a picture of me wearing a yellow hat and holding up a message written in yellow that said God Bless Seth. I’m so grateful for Seth and your family that he has improved so much. I know you still have further to go on this journey and my prayers will be with all of you for continued healing. God Bless all of you and please give a hug to Seth for me. Also, thank you for continuing to share your family’s journey with Seth.
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HOME SWEET HOME! How sweet it is , especially after such a long hospital stay. I truly understand as my son spent many months in the hospital, the longest stretch was about 7 months. Seth is an absolutely beautiful boy, through and through. I am so glad that he has a wonderful mom and dad and an adorable little brother. I am sending love and strength as you continue on this journey with your little hero.
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So excited that all of you are at home now! Family, Love and God will continue to make things better for all of you.
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Thank you for the update. He really is a special little boy whose smile is sooooooo infectious! Hope your future is as bright as his smile is, take care.
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Wonderful news! Wishing Seth continued health & happiness! Loved seeing his smiling face playing drums! He always makes me smile! ♡
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Wow!!! So amazing and great to read that my buddy Seth can go home and start thinking again of a great life ahead!! Thank you for sharing with us your journey…. This time tears of joy showed up reading your blog! I keep praying for this to be the real start of a new, happy and healthy beginning!!! =)
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Hi,
You do not know me but I’ve been following Seths story for quite some time, little did I know that we would also end up here in the bubble unit of the RVI, we are now T+7.
It’s great to hear that you have made it home! I bet it feels weird being in your own house. I hope you are all settled now and I will keep myself updated on this page. Sending our love from the bubble. Stay strong.
Sarah and Scott
xxx
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T+7. Hardtimes I guess with the chemo. I hope it is all going well for you and that you will soon be in the half way house heading for home!!
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Hello Seth family!
It is since the event #wearyellowforSeth I assiduously follows the story of Seth. Your concerns, downgrades, upgrades and transplantation and all the difficult stages of chemotherapy. I am much attached to your family through your blog, facebook and instagram. And it is with great emotion and joy that I discover in September only good things for you and Seth.
I really wish you all the happiness in the world. Seth is an example of courage and strength. I send you thousands of kisses from France. ❤
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Thank you katu
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Amazing!!! Hope Seth enjoys his own bed and his playroom which looks great fun!!!! So happy for him…. Another fantastic update that brings a smile to my face!!! X 💛
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Good luck family!
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Yesss! Welcome home love! I’m so happy for him and the whole family. I’ve been following his story since #wearyellowforseth and I’m so happy he’s finally home. Please tell him he is loved all over the world. Hugs and kisses from Peru.
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What a superstar you are Seth. I’m watching you being a big,brave boy on the TV right now. I cannot imagine what you’ve all been through and how you’ve all coped. You are truly inspirational, I’ve been moved to tears watching your story. Wishing you all a long and happy future. Much love x
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Dear Seth and family,
I have just seen Seth’s story on BBC 1 and I am so pleased that you have created this blog about Seth’s progress. I’m so happy to see that Seth is continuing to get better. He is such a brave little boy and an inspiration to us all! He shows such strength and determination – it’s just incredible. You’ve been through such a tough time and I wish you all the very best for continued positive results.
Well done Seth!
😄👍
Xx
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How wonderful to finally have him home again!!! Still praying for you all and hope that this is the start of a wonderful, long, growing and healthy time together at home!!!
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I have been praying for Seth and your family for months now! God is so so good! God bless you! I’m so glad to see that Seth is doing better. After months of reading your blog I feel like somehow Seth has also become a part of my life. He lingers in my thoughts throughout the day – “I wonder if Seth is doing any better.” I have shot countless mercy prayers upon Seth to the Lord and the Lord has provided faithfully. All glory be to Him. I will continue shooting prayers your way. He’s not done with you yet!
God bless you and your family and precious Seth ❤
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After so many months of reading your blog and being moved so many times by your family’s struggle and Seth’s illness I almost feel like he has become a part of my life too. I find myself thinking about him throughout the day and wondering how he’s doing half way across the globe. I have shot countless prayers for Seth and your family up to the Lord and He has faithfully provided. All glory to God! His love is so great and I am confident He is not done with your family yet. I will continue to pray for precious Seth and your whole family. So glad to hear he’s finally home. I cannot believe the love I feel for people I have never met – your story is powerful and moving and has the ability to provide hope and faith for so many people. I look forward to your next post! God bless you all.
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Thank you very much for thinking of him and praying for him.
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Very good on Seth progress . Very happy to see him looking so well..
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