Day 0 – transplant day 

Another step closer to Seth being able to come home. 

Today Seth has been ok. He’s been sick a few times but he’s remained temperature free. However he has tested positive for the HHV6, although at a low level. 

So we spent the day waiting for the cells to be manipulated and made ready for Seth. This includes a lot of maths making sure that the right number of the right cells are given. At 5.30pm the cells went up and the infusion started. 

As they came in to give the drug Seth got upset and a bit scared as he didn’t know what was going to happen. But within a few minutes of it running he was sat on his bed watching Mr Bean cartoons and colouring in!!!

   

 

So what now?

Well Seth’s journey is far from over. The effects of the chemo will get worse and continue for another 2 weeks. In addition the new cells have to find their home and start work, hopefully without causing problems. 

So the major first step to recovery has started, it may bring complications but we still have to take it day by day

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44 thoughts on “Day 0 – transplant day 

  1. Missy Washburn says:

    Thank you so much for the update! We have been thinking all day about you all! Holding our breath here and praying for each day to be an improvement for your hero! Hugs from Memphis, Tennessee 😊👍

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    • Margo says:

      My thoughts, prayers, well wishes, positive vibes, energy and YELLOW VISIONS of a FULL RECOVERY are being sent your way ALL WEEKEND!!

      Like

    • Jenny Bartlett Strain says:

      Hoping for a successful transplant for this brave and wonderful little guy! Seth, you are simply amazing! Sending you and your family lots of hugs from Charlottesville, Virginia! ❤️⭐️👼😊

      Like

  2. Naomi says:

    Following your journey and cannot wait for the magic marrow to begin it’s wonderful work! Wearing yellow Seth..continue being brave..Hugs from Canada

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  3. Adriana López says:

    El Viernes, 1 de mayo, 2015 13:58:04, ourlittlehero escribió:

    #yiv6514745085 a:hover {color:red;}#yiv6514745085 a {text-decoration:none;color:#0088cc;}#yiv6514745085 a.yiv6514745085primaryactionlink:link, #yiv6514745085 a.yiv6514745085primaryactionlink:visited {background-color:#2585B2;color:#fff;}#yiv6514745085 a.yiv6514745085primaryactionlink:hover, #yiv6514745085 a.yiv6514745085primaryactionlink:active {background-color:#11729E;color:#fff;}#yiv6514745085 WordPress.com | LJLane posted: “Another step closer to Seth being able to come home. Today Seth has been ok. He’s been sick a few times but he’s remained temperature free. However he has tested positive for the HHV6, although at a low level. So we spent the day waiting for the” | |

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  4. Mitchy (Michelle) Leinen says:

    He looks really good in his photo. He seems less puffy. Is the fluid in/out thing better? So glad he has gotten the magic and we are always praying. If he feels better tomorrow, quite a few people are posting pics. They don’t go to your wearyellowforseth site, however they go to the public #wearyellowforseth site. We took our picture just a short time ago and posted it. I know this is only beginning for you all, however he is such a little fighter that I truly believe you are all going to get through this!! Much love from South Dakota.

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  5. Jemma Cabral says:

    Thanks so much for the update! I have been thinking about you and your family throughout the postings of this journey so far! I had a stem cell transplant 13 years ago somewhat similar to what your husband and son are going through except I was my own donor. I will continue to keep all of you in my thoughts and prayers. Sending lots of love and positive energy to all of you! – Jemma, Chicago, IL.

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  6. Michele says:

    So he is now getting his daddy’s magic good luck to you a all the world is watching and praying as am I Seth is a real hero he is my hero 😄

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  7. Jane Mayhew says:

    Have been thinking of Seth and your family all day. So hopeful for all of you. Thank you so much for sharing Seth with us. He is an incredible person.

    Like

  8. Rita says:

    Praying for you today, SETH. You’re a brave boy and all will be ok… I have my yellow on for you today to send you some sunshine. God watch over you and your Mom and Dad…. Love you SETH, keep smiling with that beautiful smile of yours, it makes my day xoxoxo

    Like

  9. T says:

    ive been following your posts this last week and they have made me both laugh and cry…mostly cry to be honest!! i cant quite believe how brave he is 🙂 i adore the photos of him, superhero seth is my absolute favourite… you really do have the most beautiful little boy. i just want to thank you for sharing the story of your incredible son and of course his equally incredible mummy and daddy…its very humbling reading this blog every day. my thoughts often stray to seth and i really hope things go smoothly and well from here…you all deserve a break and for seth to be as healthy as he can be. sending positive thoughts and hugs x

    Liked by 1 person

  10. Jyotsna Wase says:

    So SO SO happy! Our baby hero is going to get super fit very soon. And thanks for updating us, Leanne 🙂 🙂 🙂 Had my yellow on today. Had to. After all it was our hero’s big day today 🙂

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  11. Carole Olds says:

    Day 0.
    All my good wishes hope Daddies magic find home soon then , the magic works harder than ever .
    What a brave boy
    Mummy and Daddy sending strength and fortitude to you both .
    Love from Washington,Tyne & Wear

    Like

  12. Kristen says:

    Been following since I found you guys a few weeks before Yellow day for Seth, haven’t posted before.

    But I wanted to take a quick moment and wish you luck little buddy. You are always on my mind.

    Bug hugs for Good Ol’ Texas

    Kristen

    Like

  13. Raffaella says:

    FORZA SETH!!! Ok ora la tua nuova vita deve avere inizio…..vi ho pensati tutto il giorno….finalmente posso andare a dormire con il sorriso che avevo riservato per voi! DIO vi proteggerà e vi darà la forza di lottare ogni giorno! Kiss dalla Italia Raffaella e famiglia

    Like

  14. Becky says:

    Good luck Seth. We’re currently in Leicester Royal Infirmary in CICU with our new baby boy and we’re being looked after by some of the same nurses and our thoughts are with you x x

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  15. lesliesantos says:

    Thank you so much for the update. We’re blessed to be included. We’ve been praying all day! So happy to hear the news. Will continue prayers. Love and strength to all of you.
    XOXOXOX 👏👏👏👏👏🙏🙏🙏🙏🙏👍💛💛💛💛💛

    Like

  16. LoriDeFrias says:

    You’re an amazing little boy Seth. You and your family are in my prayers everyday. Stay brave and strong! Sending Hugs !!!!!!!! XOXOXOXOXO

    Like

  17. Dulce says:

    I hope the magic finds it’s way to make him better soon! Thank you guys for being such amazing parents! You are all in my prayers. Big bear hug for Seth!

    Liked by 1 person

  18. Astrid says:

    I read ur blogs as soon as u put them up. Thankyou for taking the time, I don’t know
    How u do it. However I understand that journaling is a good form of self therapy and a wonderful gift for Seth when he is older and can look back and read ur words. U are all amazing, Seth is a freakin star, all golden and yellow shining in the world and deep in our hearts. Newcastle Australia

    Like

  19. Olivia says:

    Just wanted to say I was thinking of you today. My son Oscar had his 4th birthday today and I requested that his friends wear yellow for Seth. Most of them did. Oscar had his transplant in Feb 2012 and I think Seth is in the same room! Positive thoughts and prayers with you all x Will try and get some photos sent over to you x

    Like

  20. angelkhandra says:

    Hugs to your family and my hero, Seth! The magic day is finally here! I hope it works its healing powers quickly! Hang in there, Seth! I have been thinking of you and your wonderful family all day. I will post a silly picture of me wearing a funny yellow chicken hat while I worked at a festival today, and a picture of Kimo on your Facebook page. Love you, Honey!

    Love from Kari (and Kimo the dog) in Minnesota😊
    💛💛💛

    Like

  21. catherine says:

    Lots of prays for ur family my son james had scid they did a transplant on him at 1 month old thats was 9 years ago I know its so hard for your whole family Seth is a strong boy and you guys are amazing parents form all I have read your blog please keep posting I will keep praying
    Much love Catherine carroll

    Like

  22. Rachel says:

    Sending much love from a pediatric BMT nurse all the way from Ohio! Your such a little super hero Seth!!! I’m wearing my yellow scrubs for you today!!!

    Like

  23. Meg says:

    Wish I had a big magic wand to make it all better for you Seth but I know you are one big brave boy and you’ll be able to fight this and win. You really are our true hero. xxxx. 🚕 ☺️ 😜

    Like

  24. daddydegro says:

    I continue to pray for Seth and your family every day. Your blog makes me feel so connected that not a day goes by that I don’t think of Seth. I pray for the day he can go home and just be a little boy. May God bless you all! Bruce D. Goodrich, Michigan, USA

    Liked by 1 person

  25. Rutuja bari says:

    You are right there..just few days to go…all the love and prayers coming your way little one..much love..stay strong buddy💛

    Like

  26. mona says:

    i just want to let you know that i think you are doing an absolutely wonderful job. your son seems like the most precious little kid and he is really admirably strong. i wish him and you nothing but the best and i am praying for your awesome son! get well soon xxx greetings from germany

    Like

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