Today we had a chat with the Professor on the ward. Seth is continuing to spike very high temperatures and his liver enzymes are high. His breathing rate is up (meaning he is working a bit harder), but he is currently maintaining the oxygen level in his blood on his own. The doctors are worried about him, but we need to continue to transplant as if we delay it’s likely he will get something else.
So today he has started the prep for the op. The graft he has now has come back and is causing problems with his blood and skin. He is needing blood transfusions everyday. So he has had a drug called Campath today which wipes his immune cells. So hopefully that will help him a little in terms of his blood and skin.
He is now on two treatments for the HHV6 and we really hope that these start to work soon.
Transplant was always going to be tricky, but it’s now even more tricky and when a Professor says they are worried, you know it’s time to worry. So we have a hard few weeks ahead and we may not get round to posting updates or responding to your amazing messages. But your support has been amazing and helps us deal with what’s ahead.
However, he is still playing with his fire engines and paw patrol toys, he’s watching crafts and keeping his dad and I on our toes. If anyone can do this Seth can!