A little aside….

A huge overwhelmed THANK YOU goes out to all of you who’ve read the blog, watched the video, commented, messaged and who are planning to take part in #wearyellowforseth.

As i’m sure a few people have noticed we were totally underprepared for the response we’ve had to this!! (Sorry!)

We are doing our absolute best to respond to every single one of you but there are only me (Seth’s mum), Seth’s dad, his grandad and his aunt currently answering messages and I think we’re answering you all.

We are trying to respond to comments on posts on YouTube, Instagram, facebook and Twitter but it’s impossible to keep up with so we are sincerely sorry if we have missed you.

I am aware that a few wear yellow for Seth accounts have been set up on Instagram and facebook which have been done without our knowledge. As such we have no input on these sights and cannot respond to questions there.

The official sites are:

Facebook – wearyellowforseth

Instagram – ourheroseth

Twitter – ourheroseth.

Or you can always message on here and I will get to responding to you.

We have had a lot of incredibly kind messages from people wanting to contribute to Seth’s medical care. We are extremely grateful that here in the UK we have the National Health Service which is funded by the welfare state. This means that we do not have any medical bills for Seth. So he has access to the best treatment he possibly can in an amazing hospital without us having to worry that we cannot fund it. We are very much aware of how privielidged we are that our boy has that benefit that many other children do not.

I really worry about what will happen if the UK government pursue the planned privatisation of the NHS for children like Seth who insurance companies would be unlikely to want to cover.

We also owe a thank you to the Bubble Foundation for the additional support we are getting so that Seth (and U.S.) can be a family as much as possible.

The Bubble Foundation provides accommodation for the parents of patients on Seth’s ward (there are 10 beds always full of children going through bone marrow transplants for various medical reasons). We live a 4 hour drive from the hospital and we have a new baby. This means that without this accommodation Seth’s baby brother and I would have to live at home and Seth wouldn’t be able to see me (his mum) for the time he was in hospital. It would also put a lot of pressure on his dad who would be with him everyday alone in the bubble.

Where did the #wearyellowforseth idea come from?!

Well 4 and a half years ago as Seth was approaching his first transplant an old friend of mine was also battling leukemia. She was a big supprter of Seth and spoke to me about the significance of the colour yellow in relation to immunity. Apparently is signifies a strong immune system. So we had the idea to ask people to wear yellow to show support on his transplant day. This happened and friend, family, associates and colleagues all posted pictures of them wearing yellow. It was amazing for us as his parents to see people we’re thinking of our baby. At the time Seth was only 7 months old so had no idea.

Since then Seth’s journey has continued and weirdly his favourite colour has become yellow! His playroom at home HAD to be yellow, he LOVES minions because they are yellow and Ioves it when he or his brother is dressed in yellow!

So as his health became more concerning and we were made aware he would need another transplant, it popped into my head that it would be nice to do the wear yellow day again because Seth would really love and appreciate it this time.

Seth doesn’t really grasp the enormity of what’s happening (I don’t either!), but the pictures he’s seen of people wearing yellow has already started to make him smile. So it’s worked already!! Thank you and we are looking forward to next Friday to see how amazing people really are!!!